Wednesday, January 25, 2012

The Immense Good of Eczema Herpeticum (An Update)

Something happened after I got Eczema Herpeticum, in exactly this order:  
  1. I started to feel really sorry for myself.  You can see it in a couple of my videos.
  2. It scared the shit out of me, especially when I found out that it could reoccur.
  3. It made me mad!
This obviously didn't happen within a 24 hour period. It was a process that occurred over months. 

Feeling sorry isn't really Step 1 of this process because I had already been doing that for quite some time, pretty successfully on my own.  I focused in on my eczema like a sniper.  I mean really.  It was rare that someone would come up to me and point to my eczema out and announce it to a crowd like I was a sideshow.  In fact, this never happened.  Not in my adult life anyway.  Maybe it happened when I was a kid, but it's been a long time since then. Focusing all my energy and attention on my eczema was all me, all the time. And as a result, I led everyone around me by example, and helped them focus on my eczema issues, even when they weren't.  

Having Eczema Herpeticum was the start of a big change for me. It scared me that I was more likely to have it again, after having it once.  That August in 2010 when I first had it, I cried. And cried. And cried.  The day I went to the hospital for the 3rd time, I whispered to my husband, "I'm sorry but I can't live like this.  I can't be ugly and disgusting.  I'm so sad." I did get better, as you know.  The EH did clear up in a couple of weeks.

And when it did clear up my sadness turned into anger.  Why was I stressed and itchy and ashamed and hopeless while nice-skinned people around me had the nerve to wear shorts and short sleeves?!  Damn them! Damn me and my eczema!  Knowing that stress was a huge trigger for my eczema and desperately wanting to prevent an EH recurrence, I made a pact to take charge for good.

I am happy to say that I have not had a recurrence of EH.  I have not ever taken the prescription of Valtrex given to me nor have I needed to. I have also weaned myself off those topical steroids prescribed to me by every doctor.  80% of my eczema has cleared up. And if you remember, I described having a bodysuit of eczema covering me.  

Yes, I could have just got lucky with all of this.  Or maybe the change in my lifestyle, self-perception and attitude is really a huge factor in clearing up my eczema.

All I know is that I feel better and I do things now that I would have never tried 2 years ago.  And I love it!


  1. You are really amazing and strong. I want to be as strong as you are - thank you for your website and your posts.

  2. Just got diagnosed with EH today, thankfully we caught it two days after the outbreak (second doctor, first one said it was impetigo). Reading your posts is very comforting. I need to be more positive too, I worry way too much. I'm going to try and change for the positive.Thanks so much.

  3. I am having a current outbreak of EH and have been in tears the last 2 days ..... i hate the way that eczema has such a hold over my life. Watching your videos has braught me some comfort and helping me to stop feeling so sorry for myself. Thankyou!

  4. Thank you for the great info. I also found some useful info at as well. Thanks again :)

  5. Wow, I'm so happy for you - you have done so well! I hope this will help others !

  6. Was just diagnosed with EH too, I'm wondering how you've been managing your recurrences or if you've still gone recurrence free since your last update?


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Xzema Girl / Betty